PACO

What’s New

 

New Monthly Support Group

  • Rheumatoid and Psoriatic Arthritis Patient Support Group

    There is a new monthly support group which is facilitated by the Rheumatology nurses, Frances Griffin RN, BSN and Pat Green RN, MS. The support group is held the second Wednesday of every month from 12:15 pm – 1:15 pm at One Brigham Circle, 4th Floor, Room BC-009. This group is open to anyone with rheumatoid or psoriatic arthritis. It is open to new members each month, there is no commitment necessary. There is no pressure to talk; you can just listen. For more information, please contact Hannah Tadley at 617-525-6608 or [email protected]

    Flyers and posters are available in the clinic to let patients know the date, location and time of the support group.


    Brigham and Women’s Health Log Update

     

    eHealthLog Just made available

    In addition to the paper Health Log, we have designed an electronic version – an eHealthLog – which patients can use to electronically enter and then printout their health information in preparation for  their clinic visit.

    To use the eHealthLog Click on the link below and the eHealthLog will automatically download  to your local computer. Then  fill in information to record changes in your health status and list any questions you would like to bring to your next clinic visit. Be sure to save the eHealthLog on your computer so that you can keep a record over time.

     

    Click here to download the eHealthLog to your local compute.

     

    The Health Log is designed to help patients manage their health information and to support communication with their rheumatologist. The Health Log has two booklets, a Permanent Booklet that a patient can use to store more permanent information such as doctors’ contact information, health history, continuing immunizations, insurance numbers, pharmacy information, etc. The other is a “Carry Along” Booklet about the size of an address book that the patient can record general health concerns, current medications, patterns of fatigue, joint pain and swelling, physical functioning, questions to ask the rheumatologist at the next visit as well as other current information. Members of the PACO Patient Advisory Committee have tested early versions of the Health Log and contributed feedback during the development. Their comments include: These days it’s important to have your health history in your hand whenever you see a doctor.” Others mentioned a personal need to keep track of test results because medical institutions change computer systems, and then cannot access results.

    Read this document on Scribd: PACO passport

     

    • Click here HealthLogCover to take a look at the “Permanent” Booklet.
    • The “Carry Along” Booklet will be available online in the future.

    BWH Rheumatoid Arthritis Resource List

    Brigham and Women’s Hospital has a variety of resources that could be of benefit to you, e.g., occupational therapists, physical therapy, mental health providers and catalogues for adaptive equipment.The list below is not meant to be complete but it provides some resources.If you are looking for something and cannot find it on the list, please contact Hannah Tadley at 617-525-6608 or [email protected]. Click here (BWH Resource list) to download the resource list in PDF format.


     

     

 

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